My Ulcerative Colitis, IBD and ileostomy journeys have been a long road for sure! I spent most of my 30s trying every single pill, steroid, infusion, shot, diet, and remedy you could possibly fathom, all without relief. When the Mayo Clinic in Rochester, MN suggested that I undergo ileostomy surgery, I knew I was ready. After a decade of suffering, I was reborn on December 7th, 2015, following a permanent and total proctocolectomy with ileostomy.
"There isn't anything someone living with a stoma CAN'T do!"
Lee-Ann Watanabe
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My advice for others diagnosed with IBD and/or contemplating stoma surgery, would be for them to ask ALL the questions; especially of your medical team. I was young and naive when first diagnosed with Ulcerative Colitis. Upon initial diagnosis, I didn't think it was that serious. I didn't believe I was sick, and all I wanted to do was get well and get back to racing triathlon. I took any and every medication Doctors gave me, and I never questioned any of it. I never asked for a different way. I never thought that 10 years later, all the medications would stop working or not work at all. If I could do it over, I would find a Doctor who was highly experienced with IBD patients.
If I could let people know something about IBD, it would be that I am a living, breathing example of invisible illness. I never looked sick. Even when sick, I continued my competitive triathlon racing. Don't judge a book by its cover. My sport was my outlet; something I could control while my body continually failed me. Everything happens in your mind. With a positive outlook and a great attitude, everything is possible!
For many years, sick was my new normal. I was not living life; I was just surviving life with UC. Now, as an ostomate, I can say with 100% certainty that I am free. When I made the decision to have surgery, I decided I would advocate to show the world what people living with a stoma can do. And you know what? There isn't anything someone living with a stoma CAN'T do!
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Featured Articles
10/10/2024
me plus Community
Travel
Travelling with a Stoma Bag: What to Pack
The idea of taking long trips with an ostomy may seem daunting at first. But with a little extra preparation, you can enjoy the trip of a lifetime! Here’s our tips below to help make packing for your next adventure a little easier.
Read more04/12/2024
Everyday life
Travel
Road Trips with a Stoma
Now that you have an ostomy, the idea of taking long trips can seem daunting. But with a little extra preparation, you can enjoy the trip of a lifetime.
Read more11/12/2024
Travel
Stoma Travel Tips
Extra security precautions are being taken at airports and other transit hubs worldwide. A little pre-planning and understanding of both security rules and your right to privacy can help you avoid problems in transit and enjoy your travels.
Read more12/12/2024
Diet
Everyday life
Living with a Stoma: Hydration
Learn about the importance of hydration when living with a stoma. Our guide provides tips on fluid intake, recognising dehydration symptoms, and more.
Read more12/12/2024
Fashion
Fashion Tips for Men Living with a Stoma
After stoma surgery you can wear the same clothes as anyone else – and do it with style! Here are some fashion tips for men living with a stoma.
Read more11/12/2024
Fashion
Fashion tips for women living with a stoma
Here are some practical fashion tips from Jearlean Taylor, a successful model, author, and businesswoman who has never known life without an ostomy.
Read more16/12/2024
Everyday life
Tips for Managing Anxiety After Stoma Surgery
One of the biggest worries for people who have recently had stoma surgery is what other people will think.
Read more16/12/2024
Everyday life
Returning to Work with a Stoma
From industrial jobs to the classroom, from long shifts at the hospital to dancers – and all workplaces in between – people living with a stoma are successfully returning to work following stoma surgery.
Read more22/01/2025
Everyday life
Back to school with a stoma
As your child begins to recover from ostomy surgery, it is normal for them to feel fearful or anxious about their needs when going back to school.
Read more11/12/2024
Activity
Exercise After Stoma Surgery: Back to Basics
No matter what level of physical activity you want to pursue, stoma surgery shouldn’t hold you back.
Read more12/12/2024
Everyday life
Bathing or showering with a Stoma
Showering or bathing with a stoma should not interfere with your regular cleaning routine. Here are some tips on bathing or showering with a stoma.
Read more16/12/2024
Everyday life
Peristomal Skin Care
Knowing how to identify irritated skin around your stoma early and keeping it healthy could help avoid greater complications and make for a stress-free experience with your stoma.
Read more